Month: June 2017

The Train

Not every experience is a “success”; however, the more challenging experiences are just as important, if not more.  I had planned on not writing a post about this particular experience, but having some time to reflect on the good, the bad and the ugly, I think is worth sharing.  This is certainly not the first of these rather epic episodes, and will definitely not be the last. It did make me realize how necessary it is to prepare for any new adventure in order to allow Dubbers to enjoy it, as he so well deserves.  A couple of weekends ago we, along with friends of...

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Team Dubbers: Support

In a way, this is the most important team.  They are not the ones who say, “I am so sorry;” rather, they are the ones who say, “I am here for you.”  Our family is our #1 support.  From Dubbers’ grandparents, to his aunts and uncles who are both near and far.  They provide physical support with visits, emotional support with a listening ear, and mental support with sound advice.  I do not know where we would be without the love and guidance from our family. The next support group comes from friends.  There are your old friends who are like family, have been with you through...

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Team Dubbers: Therapy

When Dubbers began receiving multiple therapies thru Early Intervention, he was provided a “Team Meeting” mandate.  This would allow each of his EI Therapists to meet once a month (per his mandate), discuss goals, challenges and ideas with one another, while also getting compensated.  With six different therapists, coordinating a day and time was not the easiest; however, it helped to establish a pre-set day each month.  It is crucial the team understands what is being worked on across all therapies and take this into consideration during their individual sessions. While EI first introduced me to the concept of...

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Team Dubbers: Medical

When raising a child with special needs or a disability, it becomes quite evident early on that you will one, be very busy and two, meet a LOT of new people.  These people range from doctors and nurses, to therapists, teachers, and other parents sitting in the countless same waiting rooms as you.  These people become part of your TEAM. I believe there are three teams that are necessary in managing life while raising a non-typical child: a Medical team, a Therapy team and a Support team.  These teams can be hard to assemble, but when you do figure...

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NY Transit Museum

We finally took Dubbers to the NY Transit Museum located in Brooklyn over his birthday weekend. While Dubbers has actually never been on a real subway, he is very familiar with them thanks to the book, Subway, and his motorized toy subway trains. It was a quick 20-minute car ride from midtown and we found a parking lot just a few blocks from the museum. The entrance to the museum is very clever, but we missed it the first time we walked by!  It is as if you were going down to a real subway entrance and you purchase tickets...

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